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The story behind a heartbreaking image of a 6-year-old boy saying goodbye to his dying sister

The tender moment when a 6-year-old boy said goodnight to his little sister for the last time was caught on camera and is breaking hearts around the world.

Matt Sooter, from Arkansas, took the picture of his 4-year-old daughter Adalynn “Addy” who was diagnosed with a rare form of cancer

The Sooter family’s world was turned upside down when they were told in November 2016 that their daughter had Diffuse Intrinsic Pontine Glioma (DIPG), a rare tumor that starts in the brainstem.

Addy would have to live with the growing tumor for 18 months until her symptoms got worse.

Matt explained in a Facebook post how his four-year-old daughter had gone downhill fast.

Rest in peace little angel Addy. 

“A little boy should not have to say goodbye to his partner in crime, his play mate, his best friend, his little sister,” Matt wrote.

More than 8,000 people reacted to the hearbreaking photo. Now the parents want to raise awareness about this rare disease.

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